In Joan Walsh's salon.com piece cited at the end of my May 26 post, she wrote:
if you’re in Wisconsin, and relying on food stamps, remember that Republicans don’t want you to have ketchup on your hamburger. They’d probably rather you didn’t have a hamburger at all, but Wisconsin farmers and ranchers have clout, and so proposed cuts to the Supplemental Nutrition Assistance Program made room for Wisconsin products. But they still don’t want you to have “crab, lobster, shrimp, or any other shellfish.” Or ketchup. Or spaghetti sauce. Really.
This is the point the Right wingers continually dodge and evade. They don't want the poorest, no matter their station, background or jobs (e.g. "tattoo artist") to have any comfort (or comfort food) whatsoever unless they're living in a low public services state (like AL or MS) and working their hands to the bone. It doesn't matter if they can't get enough benefits - tough shit - then they ought to move - say from a place like So. Colorado. Meanwhile, they are ok with the lazy rich getting anything they want out of the rest of our hides - using tax dodges, "trusts", or whatever rentier gambits they can think of to avoid paying their fair share.
Another blogger believed he was very smart pulling up my earlier blog and questioning the image authenticity for a child I claimed to be in the throes of hunger. He said it was a "medical condition". But psychologists and health specialists will tell you that there is very little difference in a child's expression when in the maw of a developmental disability and the extreme anguish suffered in hunger and deprivation. Can he prove the child was not at some point in a similar state due to hunger? No he cannot. The blogger also questioned the circumstances pertaining to the image of Mashel McDonald making oats. He interrogated the setting and specifically pursued the background (D. Post) story to learn her dad was a tattoo artist that moved to Colo. to obtain "marijuana" for his sick child. But so what? This is irrelevant and a red herring. Many parents are now moving to this state precisely for this same reason and I wrote about this earlier, e.g.
http://brane-space.blogspot.com/2014/12/colorado-promised-land-for-marijuana.html
In most cases the MJ actually pursued is CBD or Cannabidiol, the MJ-derived substance referred to as 'Charlotte's Web'. While CBD has been described as a "strain of marijuana" the fact is, it is not. According to MJ researcher Joel Stanley.
Its importance lay in treating assorted developmental disabilities, including Dravet syndrome, a form of epilepsy. SO why do the right wingers drag this stuff in, including that Pop may be using a bit of weed to calm his nerves too - after all he has to be worried about his sick child? Because it fits in with their noisome template portraying all the welfare or food stamp recipients as being either forlorn losers, slackers, alkies or druggies. In other words, to use Joan Walsh's term - to reduce all these people to "garbage"! But the fact of the matter is that MOST are working poor.
Never mind! Because anyone who's working poor disrupts the Right's druggie-loser caricature, so they don't wish to go there. Better to keep the drugged out, obese (from overeating) and alcoholic tripe going to push the narrative that these people don't deserve any more than they're getting and likely not even that! (Btw, $880 a month for disability in Colorado is not a lot! )
The other lame case made, despite over 300,000 poor families in Colorado - which I guess the blogger expects all to simply pack up and move to MS - is:'Why are they living in a state with high living costs?' But if we all thought that way, I guess we'd all move to Mississippi! Hell, it's cheaper! The reasons not to are as diverse as there are problems endured by the resident families, including: our state has more public services available along with the assistance to help people seek them out (my niece used to work for such a public service), our state has better education facilities including for bilingual kids, and our state has better medical facilities, free clinics for the poor.
So again, we have a red herring, a distraction. Besides, if cannabidol can provide relief for a kid's tics and seizures why not live here, where at least the caretakers aren't going to be busted as they would in AL or MS?
The notion of just packing up and moving to a "cheaper state" and lower living costs is also absurd on its face. For one thing the thousands of currently struggling Denver workers and families didn't START out living in expensive surroundings! No , they began in affordable neighborhoods, but could not have foreseen how the fracking boom would lead to thousands moving to Denver and environs every year - buying up homes, renting apartments - and driving up costs. Or, the many rich "amenity migrants" moving here buying up second homes - driving home prices into the stratosphere.
Having already purchased homes, and having jobs - why would they now just move to a cheaper state with no assurance they can get the same work? Also, where is there any assurance that some form of gentrification won't also occur in these cheap states and drive up home, rental prices? There isn't any! In fact, any movers could be going from the "frying pan into the fire"- especially if it's much more difficult to get benefits! Sure it would be easier for those in apts. and I already noted how many - owing to a state law - had their leases revoked because of "refurbishments". But again, who is to provide support for these people - many of them seniors in their 70s, and 80s?
It is very easy to proffer "solutions" shot from the hip but more difficult to get at the underlying systemic problems that spawn poverty. Sadly, however, this is the biggest and hardest fact the RIght tries to avoid:: that poverty is a systemic result of irresponsible capitalism and not the fault of the poor (which marks the fundamental attribution error - blaming oneself instead of the fucked up society)
As I noted in a previous blog post on this issue:
ALL citizens are entitled to pursue happiness whether they are poor or rich! To limit their pursuit using artificial laws is against the Constitution!
Thus, even SNAP recipients must be enabled to pursue happiness even on a limited scale - and this must be defended as their RIGHT under the ninth amendment. That means they ought to be able - bogus state law or no - to enjoy a bit of luxury when they need to and if they have enough left from taking care of immediate needs to afford it.
They damned sure ought to be able to buy catsup if they want, or candy bars, ice cream or even fried chicken - to spice up their lives - and hell, smoke a little MJ now and then without the pseudo-moral scolds like Sam Brownback having a shit fit and wagging fingers. If we don't wag fingers at the parasitical rich why do we do it at the poor? Well, because we see the poor as powerless, while the rich can maybe give us some goodies. Thus, in our skewed and warped vision the rich become celebrities while the poor are downgraded to garbage.
We'd gladly kiss the rump of Donald Trump if he'd comp us a room and a meal at one of his hotels, but we'd spit on a poor, homeless man because well...."He's too lazy to work". In such a warped vision it's easy to forget the words of Yeshua: "Whatever thou doest for the least of my brethren that you do unto me".
Note the key words: LEAST of my brethren, not greatest, or richest.
Poverty is not chosen! This is the biggest lie circulated by the Right's poltroons in the GOP - most of whom would happily lick the boots of the Koch brothers, or Sheldon Adelson - in order to get some extra campaign largesse.
I don't expect the likes of these charlatans to change stripes, but I do expect people, ordinary citizens, to have some modicum of compassion on those struggling without attacking them for their benefits - or proclaiming they don't deserve them because they may be a tad overweight, tattoo artists - or god forbid - smoke an MJ weed or two using their benefits $$.
Sheesh! How about we go after the REAL parasites, the rich?
Showing posts with label Dravet syndrome. Show all posts
Showing posts with label Dravet syndrome. Show all posts
Wednesday, May 27, 2015
Friday, December 19, 2014
Colorado - The 'Promised Land' For Marijuana Cures?
The Denver Post's four part series on Ana Watson and her son Preston was heartbreaking, as it documented the pair's move from North Carolina (referring to themselves as "refugees") in an effort to find some kind of relief or treatment for Preston's seizures. (Preston is among a rare group of kids across the U.S. suffering from Dravet syndrome - a rare form of epilepsy which completely disables a child's language and social skills - as each seizure destroys more brain tissue).
The search for a cure, according to the Post (Dec. 9, p. 7A) has led to "hundreds of families moving to Colorado to treat their children with medical marijuana"
This, despite the fact there is no guarantee of a cure or even successful long term treatment that can allow symptoms to abate. A large part of the problem too, is the dearth of research into MJ's medical benefits (assuming they exist) when the feds themselves remain against it. This is despite the fact that one form of MJ oil, called "CBD" (cannabidiol) has been researched independently on animals for years - and found effective. ( Cannabidiol is that compound in cannabis that confers medical benefits but has no psycho-active effects, indeed it counteracts the effects of THC.)
"CBD" is the MJ-derived substance referred to as 'Charlotte's Web'. The Post in a side story ('Medical Marijuana Credited With Progress for Charlotte Figi', ibid.) described how five year old Charlotte Figi's Dravet syndrome seizures were ultimately controlled by its administration. Since infancy, little Charlotte suffered from debilitating seizures and practically lived at the hospital. Then in February, 2012, when she was five - her parents gave her CBD and everything "changed literally overnight".
To be specific, according to the Post account, "she slept soundly for the first time in years. She went seven days without a seizure. Over time the seizures dropped fro thousands a month to just a few. And after not speaking for six months, she started talking again."
Miracle cure? NO! CBD.
While CBD has been described as a "strain of marijuana" the fact is, it is not. According to MJ researcher Joel Stanley ('What Exactly is Charlotte's Web?', op. cit., p. 9A):
"Charlotte's Web is the brand name of the oil that Stanley makes from marijuana plants."
He's identified two strains, CW1a and CW2a, which go into making 'Charlotte's Web'. Apart from the two named strains, there are 14 others - all with identifiers beginning with 'CW'. According to the Post account:
"Stanley and his brothers now engineer the Charlotte's Web oil to try to ensure a consistent 30:1 ratio of CBD to THC (the active component in marijuana) in every dose."
This fixed ratio info has been of immense benefit to Ana Watson who has been able to vary the CBD to THC proportions for son Preston to elicit the optimal results. While Preston still struggles, he is finally able to say some words, and also ride a bike (at least his own way). Watson, like the other Dravet parents, knows that successes may only come slowly if at all, but they're not prepared to give up.
Two organizations currently serve the parents, Realm of Caring based in Colorado Springs and Flowering Hope Foundation in Boulder County. Currently the Realm serves 350 in Colorado, and 10,000 names are on the waiting list. Flowering Hope has more than 120 patients.
Currently, the parents from the two groups, when not at their child's side or attending meetings with providers and medical experts, are out campaigning via a political movement (led by both organizations) to push for pro- CBD laws in state legislatures across the nation. They reason, correctly, that all families struggling with Dravet syndrome should not have to move here to Colorado to obtain hope or treatment.
Already, in states such as Alabama and Utah, some of the parents' stories have broken through paving the way for discussions to liberalize cannabis laws.
Until that is done, and prohibitions taken off the books, families will continue to flock to Colorado as the only "Promised land". In the meantime, Colorado is prepared to fight off lawsuits filed by Nebraska and Oklahoma which claim that Colorado's MJ is "spilling over into their states" and corrupting their upstanding people.(Who drive to CO to get the retail, psychoactive products.)
Maybe these yahoos need to do more research on CBD so families don't have to flee like refugees to get to Colorado for relief of their kids' Dravet syndrome.
The search for a cure, according to the Post (Dec. 9, p. 7A) has led to "hundreds of families moving to Colorado to treat their children with medical marijuana"
This, despite the fact there is no guarantee of a cure or even successful long term treatment that can allow symptoms to abate. A large part of the problem too, is the dearth of research into MJ's medical benefits (assuming they exist) when the feds themselves remain against it. This is despite the fact that one form of MJ oil, called "CBD" (cannabidiol) has been researched independently on animals for years - and found effective. ( Cannabidiol is that compound in cannabis that confers medical benefits but has no psycho-active effects, indeed it counteracts the effects of THC.)
"CBD" is the MJ-derived substance referred to as 'Charlotte's Web'. The Post in a side story ('Medical Marijuana Credited With Progress for Charlotte Figi', ibid.) described how five year old Charlotte Figi's Dravet syndrome seizures were ultimately controlled by its administration. Since infancy, little Charlotte suffered from debilitating seizures and practically lived at the hospital. Then in February, 2012, when she was five - her parents gave her CBD and everything "changed literally overnight".
To be specific, according to the Post account, "she slept soundly for the first time in years. She went seven days without a seizure. Over time the seizures dropped fro thousands a month to just a few. And after not speaking for six months, she started talking again."
Miracle cure? NO! CBD.
While CBD has been described as a "strain of marijuana" the fact is, it is not. According to MJ researcher Joel Stanley ('What Exactly is Charlotte's Web?', op. cit., p. 9A):
"Charlotte's Web is the brand name of the oil that Stanley makes from marijuana plants."
He's identified two strains, CW1a and CW2a, which go into making 'Charlotte's Web'. Apart from the two named strains, there are 14 others - all with identifiers beginning with 'CW'. According to the Post account:
"Stanley and his brothers now engineer the Charlotte's Web oil to try to ensure a consistent 30:1 ratio of CBD to THC (the active component in marijuana) in every dose."
This fixed ratio info has been of immense benefit to Ana Watson who has been able to vary the CBD to THC proportions for son Preston to elicit the optimal results. While Preston still struggles, he is finally able to say some words, and also ride a bike (at least his own way). Watson, like the other Dravet parents, knows that successes may only come slowly if at all, but they're not prepared to give up.
Two organizations currently serve the parents, Realm of Caring based in Colorado Springs and Flowering Hope Foundation in Boulder County. Currently the Realm serves 350 in Colorado, and 10,000 names are on the waiting list. Flowering Hope has more than 120 patients.
Currently, the parents from the two groups, when not at their child's side or attending meetings with providers and medical experts, are out campaigning via a political movement (led by both organizations) to push for pro- CBD laws in state legislatures across the nation. They reason, correctly, that all families struggling with Dravet syndrome should not have to move here to Colorado to obtain hope or treatment.
Already, in states such as Alabama and Utah, some of the parents' stories have broken through paving the way for discussions to liberalize cannabis laws.
Until that is done, and prohibitions taken off the books, families will continue to flock to Colorado as the only "Promised land". In the meantime, Colorado is prepared to fight off lawsuits filed by Nebraska and Oklahoma which claim that Colorado's MJ is "spilling over into their states" and corrupting their upstanding people.(Who drive to CO to get the retail, psychoactive products.)
Maybe these yahoos need to do more research on CBD so families don't have to flee like refugees to get to Colorado for relief of their kids' Dravet syndrome.
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